So here it is another Friday still struggling with the pain, The insurance company, No idea how much longer I can keep up the fight with making phone calls, advocating & more. Who is advocating for me ? No one but myself. Yes i sign petitions, post, share, do all the right things yet here i am on SSI and an hmo medicaid plan that is horrible and i can't get any help. So much for this supposed great new health care act. what about me ? Tired of pain, not being able to go the appropriate dr's to treat Fibromyaligia, spinal stenosis, My TMJ pain, And i have several tumors on my Parotid Glands. That in itself is an entire chapter.
Yes they did a core biopsy, said something is wrong but they don't know what, come back & see me in Three months, What is going to be different in 3 months i ask ? Absolutely nothing, THey just keep on growing and hurt me more each day,.
I have one grown daughter who is married and is not talking to me now, why who knows, i have grown tired trying to figure out other's irrational behaviour. perhaps it is her controlling husband, And a grand daughter who i have yet to be allowed to see. You know the saying no good deed goes unpunished, well perhaps I should stop doing so many good deeds.
Now to my living situation, not to good when u are forced to live with your mother and an older sister.

I am a 50 something divorced woman who has Fibromyaligia, Chronic Fatigue syndrome, And sjogrens disease which not only causes dry eyes and mouth but exhaustion& Joint pain. Advocate, & also comments on my life which is not terribly exciting unless you count How , Why & where I live & how i ended up here.Fashion tips & other great Useful information
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About Me
- Blairmyaligia
- Palm Beach County, South Florida, United States
- Divorced New Yorkerliving in South East Florida Former Para Legal, Former owner of Medical Biz, smart , witty, persistant, warm, considerate, With much Intergrity & Kindness, Fibromyaligia & Other Neuro Endocrine Disorders are Two of My causes, follow me on twitter@ Blairnboca
Friday, September 24, 2010
Friday with Fibro
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I completely sympathize with you re: the medical issues. I have Fibromyalgia, arthritis of the knees, neck and feet, and crippling sciatica. I am 50 years old and am basically housebound because of the pain. I cannot walk for more than a few feet without crying. I finaly got a prescription for a wheelchair and walker, but even with insurance I cannot afford these. My husband is a Danish citiizen, and in Denmark the healthcare is free. Although it is nationalized healthchare it is excellent, nothing like Great Britain's system. Because of the high cost of my healthcare here, which has become unaffordable for us, we have made the decision to move permanently to Denmark, It is shameful that my own beloved country of the United Stated, leader of the free world, cannot offer us affordable healthcare. Are we selfish to want this?
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ReplyDeleteSo much to do & seems that i just can't find all the time i need to do all i want.
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