I am a 50 something divorced woman who has Fibromyaligia, Chronic Fatigue syndrome, And sjogrens disease which not only causes dry eyes and mouth but exhaustion& Joint pain. Advocate, & also comments on my life which is not terribly exciting unless you count How , Why & where I live & how i ended up here.Fashion tips & other great Useful information
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About Me
- Blairmyaligia
- Palm Beach County, South Florida, United States
- Divorced New Yorkerliving in South East Florida Former Para Legal, Former owner of Medical Biz, smart , witty, persistant, warm, considerate, With much Intergrity & Kindness, Fibromyaligia & Other Neuro Endocrine Disorders are Two of My causes, follow me on twitter@ Blairnboca
Monday, May 23, 2011
Monday Musings
Another day & still struggling with a very stiff neck and unbearable pain! Frustration is high and help is low. So many different thoughts running thru my mind. Research for my Parotid gland tumors which are a mystery to all the Dr's I have seen. Sunday was spent with heat wrapped around my neck while trying to find some Reliable information for the medical community. For me that was only more frustrating and scary. Feeling like a medical Mystery. Yes I have Sjogrens Disease & yes the Surgeon said my tumors are "probably related to a collagen vascular disease" yet when I have done research the diseases that come up are Lupus, RA & two more that do not fit any of my symptoms. Blood tests do not show a sed rate that would indicate lupus or RA! Yes Sjogrens is an autoimmune disease, & the Dr. said before i operate you have to treat the underlying cause and cure it. Well Doc there is no cure for Sjogrens disease and Tumors do not magically disapear without treatment. So here i am still wondering where do I for from here.
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