Monday Musings

Another day & still struggling with a very stiff neck and unbearable pain! Frustration is high and help is low. So many different thoughts running thru my mind. Research for my Parotid gland tumors which are a mystery to all the Dr's I have seen. Sunday was spent with heat wrapped around my neck while trying to find some Reliable information for the medical community. For me that was only more frustrating and scary. Feeling like a medical Mystery. Yes I have Sjogrens Disease & yes the Surgeon said my tumors are "probably related to a collagen vascular disease" yet when I have done research the diseases that come up are Lupus, RA & two more that do not fit any of my symptoms. Blood tests do not show a sed rate that would indicate lupus or RA! Yes Sjogrens is an autoimmune disease, & the Dr. said before i operate you have to treat the underlying cause and cure it. Well Doc there is no cure for Sjogrens disease and Tumors do not magically disapear without treatment. So here i am still wondering where do I for from here.